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The
purpose of this website is to explain one family's journey through a
difficult diagnosis of Infantile Spasms. The hope is that other families who find
themselves in a similar situation might receive information that will
be useful for the difficult and unknown times ahead.
When
Logan was diagnosed with Infantile Spasms we spent many days and nights reading and
researching for answers. After several weeks of this it became more
apparent that a lot of it was outdated, conflicting, and grim.
Our hope is that we can provide first hand experience of our son's
diagnosis, treatment, and current progress from this horrible disease.
There
is no right answer to treatment, and or medications. Each child can
respond differently, have different side effects, or be treated with a
variety of options. This is Logan's story. Just because one thing did
work, or didn't, doesn't mean that your situation will be the
same. We ask that you keep that in mind while reading Logan's story.
This site is dedicated to our son Logan Andrew.
(Page 2 Logan's Story)
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